“Having CF is like being in a boat with a hole in it.”

When Barbra Hendricks’s daughter, Tiffany, was born, she didn’t expect her to have Cystic Fibrosis, or CF–a genetic disorder which damages the lungs and digestive system.

Barbara’s son, Brent, was also born with the disorder, and remembers when his sister died from CF 13 years ago, when she was 15.

Here, Barbra and Brent talk about how living with CF–and Tiffany’s death–have affected their lives.

Hear the whole story here.